Wednesday, September 12, 2007

Wednesday, September 12, 2007: A Good Day

Hi All,

Dad just called me to shoot the breeze. He was sitting on the deck in the sunshine, relaxing. He described his knee as "fair" and said he has some inflamation, but that it doesn't bother him all that much and he doesn't really care. He told me he had a few beers the other day and we joked a bit about how much it doesn't matter anymore if he has a beer or two. He mentioned our visit and "getting ready for it" - and I reassured him that there was absolutely no prepping to be done. This afternoon at 3:30 their parish priest Father Miles is coming over, and he plans to have a good visit with him, including confession and last rights. Dad and Father Miles are pretty good friends, and Dad seemed to be looking forward to talking with him. He asked how my classes are going and I described my students to him - twenty-something year old electricians getting a college education through their union. We talked about my choice to teach at-risk students and how important my job is to me. Even as I write this, I wonder how he still has the energy to ask such questions and say such things. But that's Dad.

One of his concerns is the anxiety and sadness other people are going through. I reassured him as best I could that we are not at all interested in falling apart and melting down. We are instead entirely interested in making sure that he gets what he needs and enjoys his days as much as he can. I told him that mostly, we are sad for him that he got such a tough break. He said, "Nah, not really. I got to have two families full of kids. Lots of people love me. It could be a lot worse."

I was looking at the lovely comments you all posted, and Aunt Terri mentioned the Leamy Boys looking at old photos. Here's one I ran across recently. I think you all will see why it is one of my favorites.


He asked what was happening with the blog, and I described the beautiful comments you all have posted. He asked me to post an update letting people know of our talk and how he is doing.

He mentioned that he thinks he'll probably have some good days and bad days mixed in. Then he said, "Actually, I am kind of concerned about crying wolf... you know, looking really bad and then being better the next day... and then doing that like ten times and still being alive in a year and driving everybody crazy."

I, for one, would love, to the point of delirious giddiness, to be driven that kind of crazy. I know you all would too.


Jen

Monday, September 10, 2007

Dear Family and Friends,

I add to Eileen’s lovely post a shout out to my brother John, who turned forty yesterday, September 8th – HAPPY BIRTHDAY, Buzz!

I would also like to thank all of you who have offered support to my brother, sister and I during this past week. I wrote once on this blog that our family is an embarrassment of riches. I mean that now, more than ever.

Having said this much, I want to answer all of you who have asked how John, Jill, and I are doing.

In short, we are doing just fine.

By “fine”, I don’t mean fine with it, or fine and dandy, or fine, have it your way.

The sort of fine I mean is quite different: fine as in of rare or remarkable quality. Fine as in fine china.

How so?

Through no effort or accomplishment of our own, we are indeed rare. Our father is an honorable man, one who supported us, gave us a home and family, -- and loved us. And this is all before he was a Boy Scout leader, a brave in Indian Princesses, a running coach, a sailing teacher, a career counselor, a financial planner (and too often, rescuer) and (bless his heart… what a pain I am… relationship advisor) and more than all of these, a friend. My whole life, my dad has been my most trusted and loyal and devoted friend. Being able to say so makes me rare indeed. My siblings and I have been honored with our dad’s love, guidance, and friendship our whole lives.

We are even more honored because he has opened his heart and home to Eileen – and has offered the same unconditional love and support to two new sisters. I have never been so proud of my Dad as I was the day he chose to love again – and our family grew to include Mamacita, Phaedra, and Jessamin. It is for this reason that I understand what he meant when he said they had been short-changed. So many people I know never had a good father for one day of their lives – and John, Jill, and I have had one for the entirety of ours. Protracted self-pity, in a case such as ours, would be inexcusable.

Even so, our hearts break. Of course we shed tears. But we are governed by our faith that the injustice of so short a life will be assuaged, in part, by our belief that instead of seeing his grandson Finn two or three times in a year, Dad will see him every moment of every day – and appreciate even more the wonderful mom that Emily is from the moment she wakes until the moment she sleeps. Dad can be with Eileen at any and every moment – and by her side when her loss is most difficult. If he wants to see me teaching grammar to electricians local union 3 – he’ll be able to – though I hope he has more interesting things to do – perhaps watching my brother design the next U2 video - or better yet, watching my brother be the kind of father my dad taught him by example.

The injustice will again be assuaged when he sees again his family and friends who have gone before him. Vince Bell, a man we loved so well we called him Uncle – will be most eager to see Dad. Maw Maw and Paw Paw, who instilled much of Dad’s stellar character and sweetness of spirit, are watching and waiting to welcome their eldest son home. Eileen’s parents, too, are I am sure most anxious to welcome him.

But most of all, our mother is waiting. I am sure she will let him know that That Guy I dated in high school was not so dangerous as he supposed. I am sure she has as thing or two to say about how long it took him to build the lake house, but most of all, she will give him a proper scolding for taking so long to snap out of it and marry Eileen... but I leave that happy chat to them. I am sure they will be heartily glad to see each other.

When I pulled out of the driveway on August 24th and said goodbye to my family, I cried – as I have done every time I have said goodbye to my Dad before a separation of more than a week - since I was two years old. I do so partly because I inherited a streak of sentimentality from my mom, but also because from the time we were children, I knew what I valued: my family. I knew it because my Dad taught us that nothing matters in life - not money, nor success, nor acclaim - so much as loving the people around us – and how precious our time together is.

It is for this reason that John, Jill and I will see him and speak to him in the weeks to come, even while his choice to forgo further treatment – and his wish to live out his days in his own home, with his darling Eileen - are honored. What visits we do make will be brief and full of joy – a celebration of his life and the unparalleled legacy of love he has built, day by day, hour by hour, just by being his astounding self.

As our Dad taught us how to live – full of love, as if every day may be the last – he is now teaching us how to die. Dad is nothing if not forthright, honest, and true, and I know if I asked him to talk about what is happening, and how he wants to go about it, he would answer me. And this is what he'd say: “Jenny, don't worry. I'll sit out on my deck, and look at my lake with my wife. Thusly.”


Jen

Thursday, May 17, 2007

Thursday, May 17, 2007: Back at the Lake!

Hello Fellow Blog Readers:

Just a short post this morning to let you know that Dad and Eileen are back at the lake.* The hospital released them on Tuesday afternoon, since really all that is going on medically speaking is the skin rash (bad, but not destabilizing) and there is absolutely no reason to think he'll pick up another infection. He has just as many white blood cells as the rest of us. Horray!

Dad and E were visited by brother Patrick (the elder) on Wednesday, since he happened to be passing nearby for business. Uncle Pat was able to help them out with all kinds of household chores, and they had a great visit as well.

The plan, as I understand it, is for Dad and E to recover from this last round for a bit. How long a "bit" is, no one knows. But the last time E asked Dr. O what the plan would be going forward, he basically said "we'll talk about it later." I know I am not alone when I say that I hope "later" means more than a few weeks. Dad and E really need to feel like they have their life back, even if it's just for a short while.

Be assured that if there is news, a post will appear. Until then, picture Dad and E sitting on the deck with their feet up, drinking coffee and eating Frosted Flakes. That's their plan, and it's a mighty good one.

Jen (for Dad and E)

*their wireless is down for some reason... so Phaedra or I will post news if anything comes up... or until it's fixed...

Monday, April 30, 2007

April 30, 2007: Info, both Anecdotal and Medical

Hello Fellow Blog Readers.

I write from Maplewood, NJ. John and I got in late last night from our South Carolina trip, and I am spending the day here playing with Finn, who is taking his nap right now.

Our visit with Dad on Sunday was similarly delightful. Eileen picked us up at the hotel, and then we went to Whole Foods to pick up a sandwich and some lovely German seltzer water, which Dad loves. When we arrived back at the hospital, Dad was freshly showered and in his civilian clothes, reading a book. He ate his sandwich and talked a bit about (among other things) the wonders of technology (he wants to learn to make a video montage of Finn footage when he is back on his feet) and the great fun to be had watching ice melt (doesn't sound like fun? Try being in the hospital for the better part of seven months... it becomes fascinating). I told Dad my stories from my recent travels and we sang the peanut on the railroad track song. The lyrics, for those of you unfamiliar with this old favorite:

Peanut sat on a railroad track

His heart was all a-flutter.

Along came a train and made it crack

And called it peanut butter

That afternoon, Dad and E got into a position they call "the pocket" in which Eileen gets next to Dad on the hospital bed and they have a moment or two with Eileen's head on Dad's shoulder. During this time, I was on one side of the room and John was on the other, and we had a short siesta. It was an "all is right with the world" quiet interlude during which we got to simply enjoy being together without medical talk or small talk or anything else. After that was over, Dad had some chocolate cream pie, and John and I got ready for the trip to the airport. It was a lovely, lovely visit. We'd do it every weekend if we could.

In the way of medical news, there is some to report, but not a huge amount. Dr. Kubiak (I could be spelling that incorrectly, no idea) came in and reported that Dad "looked better" to him. And then we got some encouraging news out of the lab reports:

Dad's white cell count made a huge jump from Saturday to Sunday, from .3 to .8.

His other counts (ie, platelets, hemoglobin, etc) are also rising, but more slowly.

The blood cultures are now perfectly clear.

As far a anecdotal information, I can offer the following: Le Shae (weekend nurse, and a darned good one) told us that she was pretty sure that all the confusion was coming from the steroids Dad was taking to get control of the rash. When John and I asked why there was a need for the battery of tests to rule other things out, she and the other nurse on duty, Jessica, both laughed and said, "Dr. Spitzer ordered those tests. That's just Dr. Spitzer. He's a research guy. He likes data. It's just how he does things." Well, OK. We'll take it.

From beginning to the end of our visit Dad got better and better and seemed more and more like his old self. Granted, he is not actually completely and totally like his real self, as he is pretty thin and georgeously wrinkle free (credit the rash for that) but his personality, as you can surely tell from the face washing story, is gloriously intact. His body has changed a bit, but it's still Dad "in there," if you know what I mean. We were very reassured that he is going to come through this thing ok.

Eileen dropped us off at the airport and then drove directly to the Hilton hotel, where she spent the night (hopefully) in unbroken, dreamless slumber. She truly needed it, and we were glad to see her on her way toward it. John spoke to Dad this morning, and reported that Dr. O'Rourke had been in that morning, and that he was "all smiles." When I catch up with E later today, I'll find out more about all the smiling. :-)

Jen (for Dad and E)

Saturday, April 28, 2007

Saturday, April 28, 2007: Washing his Face, Leamy Style

Hello Fellow Blog Readers.

John and I arrived today to find Eileen at the airport, ready to drive us back to the hospital. She was in good spirits and gave us a run-down of what to expect: confusion, thinness, general sweetness. About what we expected. Arriving at the hospital, we gowned up and gloved in. We found Dad sitting on the edge of his bed, happy to see us, yes, but clearly thinking about something important. After a few moments, he got the words out:

"I need to wash my face," he said.

Eileen sat next to him and explained that the medical team were not so keen on him walking back and forth to the bathroom without really needing to - and that she could get a wash cloth so he could wash his fact from bed. Dad did not like this idea, not at all.

"I want to wash my face... Leamy style," he said.

We (John, Jen, and Eileen) formed a hovering contingency around him as Dad walked to the bathroom (IV tree in tow), washed his face, dried his face, and then proceeded to swab down the sink to remaining traces of water from the area... Leamy style.

The rest of the morning and afternoon was just lovely. Dr. Weems came in with some good news: Dad's blood cultures are clear, and he "looks better" (in the opinion of Dr. Weems) than he did yesterday. In addition, Dr. Weems believes that the infection originates from the skin, rather than the knee. Yahooo! Another Dr. (I can never remember the name of this one) came in and checked Dad's lungs, declaring them "much better" than yesterday. He also pointed out that Dad's oxygen is much better (at 95, whatever that means...)

We had lovely talks about the weather, about my recent trip to Morocco (yes, I just returned from there), about all the sweet and funny things Finn is saying lately (ie, Dad, what does space do? or Mommy, I want to go on Jenny's rocket ship to Africa). Dad also brought up his desire to have an "end of cancer party" - a party thrown in celebration of the last round of chemo. We'll keep you posted on the arrangements for that soiree. It will be quite something, I assure you.

John and I are settling in at the hotel right now, and we'll head back to the hospital in a few hours. I'll post again if anything changes... But is short, we are having a lovely day. Until next time, LPCTC, lift, bend, reach, push, carry... do what you do. We love you.

Jen

Friday, April 27, 2007

Friday, April 27, 2007: AUTHORIZED Post Containing Actual Information

Hello Fellow Blog Readers.

I just got off the phone with Eileen, who was full of information... Here's what she told me:

Dad is now on some new anti-biotics, and they are doing a better job controlling the fever.

Dad's oxygen level was lower than the doctors like to see, so they have him on oxygen. Please note: this is not a ventilator situation... it's the two plastic air hoses in the nose situation.

Dad has another rash (darned anti-biotics) which is a total drag.

Dr. _______ (can't remember his name, sorry) prescribed a three day course of steroids to help with the rash.

The catheter is out, but there is still some irritation.

Dad has been "confused" in the last few days, which could be a result of any number of things (or a combination). Possible sources: chemo brain (my vote), fever, rash (inflamation can cause confusion too), lack of oxygen, or something else. It is because of the "something else" possibility that Dad's doctors have put him through a long list of tests in the last 24 hours, all so that they could rule out other possible sources. Among the tests: lung test, heart test, and this morning, a CAT scan. Wow! There are now pictures of Dad's head on file at St. Francis. I will be studying those pictures when I arrive tomorrow so that I can point the halo out to the medical team. I bet they have never seen one so bright before.

Naturally, all the tests take time and energy, which is the opposite of fun for Dad, but due to the halo effect, he is enduring it all pretty cheerfully. He is, according to Eileen, he is aware that he is confused, and he believes that chemo-brain is the cause. He is not worried about it.

If anything else happens before I head out to the airport, I will be sure to blog it, but as I expect nothing to happen, I am betting the next post will be tomorrow morning about 11am Eastern time.

Jen (with full permission from Dad and E)

Friday, April 27, 2007: Unauthorized Post Containing (Almost) No Information

Hello Fellow Blog Readers.

I write this time without the request (or permission) of Dad or E. I do so because* I never caught up with Eileen on the phone yesterday (no, it's not because she was asleep, as we all had reasonably hoped. She was shopping for "supplies" of some kind) but I DID SPEAK TO DAD. Here is nearly accurate record of our phone call:

*ring ring*

*ring ring*

(me with fingers crossed, hoping E would answer)

*ring - click*

Dad; "Hello Jenny"

Me: "Wow. Hi Dad."

*pause*

Me: "How are you feeling today?"

Dad: "I am just laying around, really."

Me: "Anything new going on? "

Dad: "No. Eileen went to the store to get things. That's the biggest thing."

Me: :"OK."

Dad: "I'm doing fine."

Me: "You sound pretty OK. You sound like you are just waiting for your white cells to come back."

Dad: *chuckling* "Yes, I am waiting for my white cells."

Me: "Well, OK. So nothing is new medically speaking."

Dad: "Nope."

Me: "OK. Well, I guess I'll catch up with you tomorrow. If something changes..."

Dad: "Yes if something changes, I'll call you and play taps."

Me: *confused* "Yes, do that."

Dad: "OK, bye, honey."

Me: "OK, bye."


So there you have it. According to Dad, nothing is new except for that Eileen apparently left the hospital to get something from somewhere, and Dad sounds what I will just call "bored" and "tired" and "OK." As some of you know, John and I are leaving early Saturday morning for a short visit to St. Francis Hospital (we are very, very excited about it..) and, so if there is no post later today, I will almost certainly post from there on Saturday morning.

And now I am going to get out of here before Dad turns off my blog permissions... because I am really out of line here. :-)


Jen (acting on her own initiative)

* and I know a lot of you west coast people check the blog first thing in the morning and feel better when there is something new.